For Katie the Warrior

Thankful

Oh it’s a rough holiday season for our family this year. We live in the tension of celebrating and mourning and praying and crying and hoping. I know some of you do too.

I am SO very thankful for my family. We have rallied. We have rallied more than we thought possible, honestly. Nothing looks the same as it did SIX months ago but we’re in it for the long hall; until Kate is restored to our family.  Katie has a family behind her that would do anything to help her heal and her warriors are fierce.

I’m so thankful for my Dan. I said “we have to buy a van” and he said “yes”. I said “I want those babies with us several days a week” “of course” he said. “I need to go look at facilities for Kate. Tomorrow” he just smiles and says “I’ll take off work”. This man is my hero. It is not glamorous to be a support role.  Nobody is going to throw him a party for watching our kids after working all day so I can be with Kate but without Dan there’s no Ashley. I prayed earlier this year for God to show us how to be a team. This wasn’t what I had in mind but He’s nothing if He’s not faithful!

I’m so very thankful for my tribe. There are days that I feel deserted by the Lord. My tribe straight shows off on those days. They pamper with words, with cries, with coffee and gifts. They watch my kids when I can’t. They say hard things to me. They push me and tell me who I really am when I forget. They pray over and over-every time I tell them there’s something new that needs praying over they do it and they ask me about it the next day. They are so precious. They are Gods picture of His provision incarnate.

Lastly-I’m thankful for a God who can handle anger. I’m angry. It’s not fair. I’d do anything to change what happened to Kate and I can’t. He and I aren’t done.

Romans 15:4 says, “For everything that was written in the past was written to teach us, so that through the endurance taught in the Scriptures and the encouragement they provide we might have hope.”

I’m not the only one in the universe walking through great sorrow. I can still have hope.

Well enough crying-I’ve got babies to play with. Enjoy your Thanksgiving!

If you find yourself praying around a Thanksgiving table, pray for Kate. That this is her last thanksgiving wishing she was holding her babes. 

For Katie the Warrior

Happy 33rd Birthday, Kate!

Oh, this day. I swear I’ve lost five pounds of water weight weeping over this day. 

My feisty  sister, you are so very precious to me. You are the president of my fan club, my decorator, my living and breathing mommy blog, my canfidant, my dear friend. You know where everything is, your are in every childhood memory, the way you value and collect beauty is contagious. You are every prayer on my lips and in my heart, you are every single tear that has left my eyes the past six months. You are somehow missed so incredibly yet always near. You are the first person I want to share anything with and one of the opinions I constantly seek.

May this year be the turning point. May it be the biggest story YOU will ever tell. Kate, may you know how deeply you are loved, adored, and missed each day. May you know the Lord’s voice and praise Him even while you walk through this hell. We walk with you with our prayers and our encouragement and our presence but the journey and battle are yours.

We will never give up hope and battle for your total restoration to our family. We go nowhere without you!

My dear friend Katherine Wolf wanted to chime in from the west coast. Check out her birthday wish to Kate! If you haven’t, please check out her website! Read her book! Support her ministry! Her encouragement has been invaluable to me over the past six months. ​

Renovation

Tiny Updates

First up: I’m all about clean countertops. I want everything hidden. Coffee pot, toaster, etc. they must live in cabinets. At my old house we had this neat mail sorter we used for veggies just above the island.


I had our veggies in bowls for the last year and it was making me nuts! So here it is-my homegoods find:

We fell in love with the house when we saw the sunroom so I like how the wood in the holder brings in the wood ceiling.

Next up: oh the clock. When we moved we lost all our yellow so these shutters I covered no longer worked. 

They were truly a labor of love and I have really enjoyed them the last five years!

I found this awesome clock at a Pier1 sale. My mom got it for me as an early Christmas present.

What do you think? Christmas is slowly making its way into our home. We could use some Christmas cheer early this year.

I’ve been working on (read sobbing through) a thanksgiving post for this year. Stay tuned!

For Katie the Warrior

Drowning Rats

I was at a conference the other night and one of the speakers told the story below, I found it summarized online so I’m giving that version:

“In the 1950s, Curt Richter, a Harvard graduate and Johns Hopkins scientist, did a series of experiments that tested how long rats could swim in high-sided buckets of circulating water before drowning. Dr. Richter found that, under normal conditions, a rat could swim for an average of 15 minutes before giving up and sinking. However, if he rescued the rats just before drowning, dried them off and let them rest briefly, and then put them back into the same buckets of circulating water, the rats could swim an average of 60 hours. Yes, 60 hours. If a rat was temporarily saved, it would survive 240 times longer than if it was not temporarily saved. This makes no sense. How could these rats swim so much longer during the second session, especially just after swimming as long as possible to stay alive during the first session? Dr. Richter concluded that the rats were able to swim longer because they were given hope. A better conclusion is that the rats were able to swim longer because they were given energy through hope. The rats had a clear picture of what being saved looked like, so they kept swimming.”

– Isaiah Hankel from Black Hole Focus

I can’t stop thinking about it. It feels so true. The last few weeks have been rough for me personally, hence the radio silence. I’ve had a mountain of questions and not a whole lot of answers. Kate, (my sister emerging from a coma if you haven’t read up in a while), continues to improve slowly, slowly, slowly but we claim that as a victory. We’re in the midst of some insurance battles, some placement battles, some battles over confusion and hopelessness but it really does feel like we get to that 14th minute and God pulls us out of the water. We find our hope and we get ready for the next sixty hours.

The conference I went to last week included one night that had an emphasis on healing. Pretty much nothing I had hoped would happen ended up happening. Let me be blunt, absolutely nothing happened that I begged God to let happen! I left so deflated! But since then it seems some things we’ve been praying for have broken free. My mom was with Kate late into the night past visiting hours while I was at the conference and she needed to be there at a very specific moment (health episode) to speak for Kate. That only happened because I was at a prayer conference. So if it seemed God wanted to send Dan and I 90 minutes north so somebody would be visiting Kate when she needed a visitor, we say “yes” to that provision.

It helped us see that this is not the end of this story. She’s not out of God’s care. I tell her nearly every time I see her through sobs that she is precious to God, that she is loved and not forsaken, that nobody is giving up hope of restoration and that we all keep fighting together until we win. I say it when I question if it’s true and when I’m certain that it is. I thank God out loud over her when it seems cruel that I get to leave and when it feels absolutely true that he’s been faithful. I’m convinced the longer that we walk this road, that out of me she needs someone willing to stand with her and pray, to remind her of truth. Whether through gritted teeth or sobs she needs to know I’m still standing while she lays.

I beg of you, keep praying! Keep standing with us as we make really hard decisions, as we fight like hell, and as we turn into puddles. We so value your loyalty to our family, your kind words, your thoughts and ideas. We couldn’t support Kate like we are without you!

If you’d like to donate to help with costs, please click here!

For Katie the Warrior

I Met a Hero!

So today was a day for the books. I spent the afternoon with one of my dearest friends getting pedicures for their birthday. I should clarify that she took ME for a pedicure for her birthday which is just insane. It was so lovely.

Then my mom and I drove 90 minutes to Alexandria, VA to meet Katherine Wolf. As in THE Katherine Wolf, the author of Hope Heals, the book I’ve been obsessing about since Kate got sick. If you don’t remember, she had a crazy brain stem stroke at the ripe old age of twenty six while her six month old slept in the other room. She has had a miraculous recovery in a thousand ways and she and her husband founded the ministry, Hope Heals. They travel around now sharing their story of Gods faithfulness. There are so many parallels between her story and Kate’s that it is actually startling. Anyway, I emailed her when Kate became ill and we’ve been pen-pals ever since. I saw that she was coming to the east coast and my mind was made up; I had to meet her!

So my mom and I made a date of it. We drove down and raced to the front of the church where she was talking with a few people. I introduced myself and within 30 seconds we were all in tears; so happy to finally meet. I thanked her again and again for her sweet words and encouragement and she shared how happy she was to be on this side of the encouraging and how desperately she’d begged God on Kate’s behalf. We were all a bit weepy to say the least.

When she and her husband Jay started talking, she stopped the show and said “where are Ashley and Robin? wave your hands!”. She explained through tears how humbled and blessed she was that we drove to meet her (nuts!) and asked everyone to pray for Kate. It was just crazy, what a night. Such a precious time of encouragement for my mom and I. Such hope for what is to come. There is nothing more beautiful for us to hear, than “I was in Kate’s shoes, I remember the trachea, I remember the feeding tube, here I am, God is a God of miracles”. We’re so desperate to sit next to Kate and have a back and forth conversation and I’m so hopeful that I will get to do that one day! It may take a while but that’s okay!

What a day. I’m exhausted but just had to share what a sweet evening we had. I’m so thankful for people who are willing to sacrifice their time and energy to encourage people in their chaos. What a gift! I hope this is the first of many meetings!

None of the Above

“No time” food!

I have no time these days. I take that back, I have the same amount of time as everyone else but it seems I’m having less and less time to cook. Some of it is Judah’s needy age, some of it is lack of time to plan and purchase adequate meals, some of it is exhaustion; physical and emotional! Some of it is sheer laziness. I’d rather be___________. (Usually running out of the house when Dan gets home to get a quick visit in with Kate).

So I’ve had a few meals that are literally keeping my family alive. I’m still trying to lose baby weight sixteen months later so I’m trying my hardest to eat well and not carb load. Boo.

Onto the good stuff. I’m listing a few favorite quick, easy, yummy recipes below. Please comment with some other crowd pleasers in your home! The quicker the better!

1. My Dan lovingly calls this recipe “quinoa beef” which admittedly sounds gross. It’s delicious! I tolerate quinoa but I legitimately love this dish.(Gf)


2. Burrito bowl from Rachel’s Nourishing Kitchen. It’s super yummy! We make this almost weekly all summer long. (Gf)

3. Ok so this ones more for Dan and I. This grilled cheese is heaven. We don’t do the blue cheese. When I was pregnant with Lillian I would eat two of them. So, so yummy! Especially if you have some fresh pesto lying around, which these days I do not!

4. I’m all about this turkey bolognese sauce. All about it! I just want to eat it with a spoon it’s so good! If I’m making a pound of pasta I typically buy two. It’s in the frozen food section at TJ’s. (Gf depending on the pasta used!)

5. Fall is arriving in Baltimore and that means soup! I’m all about slow cooker soups that I can throw together early in the morning, especially if all of the ingredients are real food! This chicken wild rice soup is a favorite. Certainly not the lowest calorie soup but everyone needs a splurge! (Gf)

Now don’t forget to comment with a favorite QUICK AND EASY recipe! Help!

For Katie the Warrior

God of Miracles

Sometimes it doesn’t look like an immediate reversal in a symptom or disease. Sometimes it’s protection. Sometimes it’s favor. Sometimes it’s everything falling into place when it shouldn’t.

It feels like we have been given a shower of hope this week. During the first month when Kate became ill we had a lot of doctors proclaim some pretty rough stuff over her life. These doctors spoke about broken systems and lack of functioning and a grim future and we listened. We cried, we asked questions, we took it in. Then we started praying pretty specifically that all the gloom and doom talk would serve a purpose. That her progress would one day blow the doctors away and that they’d be pointing to the miraculous vs their own strength.

Kate has been on a slow and steady incline, it seems her body chooses areas to focus on healing. Last week Kate started moving her toes, feet and legs consistently and unprovoked. Friday, Kate’s vocal chords started working some. Sunday one of our pastors prayed specifically for Kate’s healing at church during the service. Monday  she got her highest rating (17) yet. Tuesday that same pastor felt compelled to pray specifically for her toes/feet/legs without knowing that they had started to move. Wednesday a few friends sat in her Physical Therapy session and SHE STOOD UP. Someone was helping to steady her but her weight was on her legs and they didn’t buckle.

Sometimes miracles look like an immediate healing. Sometimes they look like a room full of therapists cheering on the 32-year-old woman with little kids at home as she stands for the first time in almost three months. Sometimes it looks like people committing to visit weekly come hell or high water in their own lives. Sometimes it looks like insurance bending rules. Frankly, sometimes it looks like your three year old telling her little cousin “God loves you, He’s inside your heart and He wants to make your mommy feel all better. He loves to heal people”. Sometimes it’s all you need to hear coming from the back row of the minivan. Yes, He loves you. He wants to heal. He is healing more than Kate. He’s healing all of us and we’re so thankful to be let in on the journey and to watch the doctors be blown away.

For Katie the Warrior

A Rambling Update

About nine months ago a few of my friends from college decided we would go to the Belong Tour In Philly. (The funny thing is three of us live in the same neighborhood and walk to each other’s houses. Step 1:go to college, step 2: buy houses in 1/2 mile radius so you can pretend you never are leaving college) Anyway, a few of us really love Jen Hatmaker and it seemed like the perfect reason to take 24 hours and be us again without our families. Fast forward to a really bad summer and I was looking forward to the short trip away.

By Friday of last week I was not a puddle but a river of tears. Id been trying to visit Kate for a full week and it just seemed like the entire world was plotting against me. Our tenant decided to tell us he was breaking our lease, we found out we needed to have our sewer line replaced in our rental, a thousand schedule issues came up and by Friday I was a mess. I finally asked a friend to watch Elle and Jay and I were off to visit my sister.

There’s something about the drive to see her. I sob the whole time. It’s a mix of anxiety about the whole situation, I’m reminded of how normal we were when we were at the OBX a few short months ago when all of this happened. (I vow to never set foot there again.) I think about the loss I feel daily, how I miss her. I think about her kids and husband and pray for them. I pray that when I show up something would be different or cool or we’d have some type of neat connection. I sometimes tell the story in my mind of the last few months to see what new things have happened since the last time I visited. Then I try my very hardest to give Kate to God. I feel like Abraham offering Isaac over and over to God and it doesn’t get easier. The hardest part is it doesn’t feel yet like he’s told me to stop.

Anyway, I strapped Judah into the ergo, kiss his sweet head as he sucks his thumb and snuggles into my chest. Then we start the walk in to visit. We sign in and get the dumb visitor tag then turn all of the turns to get to her room. Deep breath in and I see her in her wheelchair. I look over and my dad is talking to the PT. as always I introduce myself and she says as everyone does “you look alike”. I smile and think ‘Kate loves when people say I look older’ so just for Kate I tell her I’m younger and wink. She’s rolling her eyes on the inside, I know it.

Then I ask the PT how she did today and the PT tells me a miracle. She doesn’t tell me it’s a miracle, of course, but it is. Something that wasnn’t going to ever heal is healing and they’ve done nothing to help; its just working now when it didn’t before. Of course I cry again. I bend down to Kate with my Jay in my arms and tell her how awesome it is that Gods healing her day by day. It was a good Friday.

Before I knew it we were on the road to Philly. We go to the tour on Friday and at breakfast Saturday we decide next time we go away we want no agenda, just time away with honesty and tears and maybe a beach. We go to day two of the conference and it was fine, nothing blowing us away. Jen Hatmaker ended up not being able to attend our specific conference in the tour (gasp!) but they had someone else. Glennon Doyle Melton was there! A friend just sent me her book, Love Warrior, last week and she just acted like we were having a conversation across a table from one another!

Have you ever had one of those days that everything changes? You were living your life and them BAM nothing will ever be the same?

Yep. June 26th

Do you have some kind of pain that has just rerouted your life and you have the opportunity to walk toward it or run?

Why, yes. Everyday

I suggest you walk toward it, here’s why…*

It was craziness. I sobbed for the entire presentation. Her pain is different; a betrayal, a marriage collapsing, it’s not the same. But pain is pain and I was just with her, hanging on to every word! I felt like God sent her to that conference just for me and I was so grateful.

We left the conference, spilled our guts some on the way home. I got home to a sick baby, by Sunday night had two sick kids.

I spent a few hours this morning pushing my kids in the stroller at the mall while I made phone calls to ten different plumbers trying to get quotes for the sewer. My dad texted me that Kate went up FIVE POINTS in the coma recovery scale in the last ten days. She’s dropped a few the week before but she is still 4 points more than she has ever been before and it seems like God is just hollering, “you better keep watch or you’re going to miss it!”

So I’m exhausted. Trying to not get sick and starting another crazy week.

Rambling-over.


*my paraphrase

For Katie the Warrior

Anything

I was running a bit late for a massage a friend gifted me to help in the midst of the chaos. Friends are so good. Anyway, my mom texted me something about my sister that in the grand scheme of life doesn’t matter but it wasn’t what I was hoping. My gps took me dramatically past the massage place and when I got there I was a heap of bleh. So I layed down and said simply, “God, I’m trapped here. You have my attention for the next 60 minutes; a captive audience. Say something. Do something. Anything. Just help. Let me in on the plan.”

I say things like this all of the time and usually nothing happens. I almost missed it today when it happened. Before I knew it I was thinking about simplicity and how nice it would be to have a membership to this massage place to get them more regularly, then I was wondering if I had any expenses I could give up in order to get this membership (No), then before I knew it I had an image in my head of the cover of the book, AnythingI’ve written about this book before and how it was a great book to get me thinking. Anyway-my thoughts IMMEDIATELY went to “Ashley, you said I could have anything, even your health. You don’t mean that, you wont give me Kate. You wont trust me with her.” I immediately had tears seeping out of the corners of my eyes, getting my hair wet as this nice lady was rubbing my feet. Hoping she couldn’t see me, I tried my best not to let out a single sob. Caught. He was right, I vowed anything and if this was a test I would be failing miserably. A lot of the time I really do trust God with Kate and her family. But sometimes I want in on the plan. I NEED in on the plan.

This week preschool started and I could barely keep my jaw clenched tight enough to not totally come unglued in front of the preschool director as she asked how my sister was. Seems like such an easy question, I answer it all of the time. But for some reason having to explain it all over again to somebody new feels too heavy to bare.  Then I took those sweet first day of school pictures and had to reapply my mascara, its just too much. Shes supposed to be doing this and I feel like a thief sometimes, robbing all of the memories while knowing I have them so I can share them. So weeks like this I {think I} need a bit more information, a vague road map, even, from God and usually He doesn’t give it to me. But at least He’s not silent. At least I got a glimpse of how I’m not holding up my end of the promise, how He’s trustworthy and I can believe that, no matter how He chooses to show His grace.

I was praying over Kate this afternoon with a friend. Because of Ann Voskamp, I figured I better start with praise if I’m ever going to see my joy. I was so immediately flooded with a thousand things to thank God for. All of the miracles He’s already performed with Kate, the way He’s protected her sweet babies, the ways He’s provided preschool for them, the way her husband has the strength of three men for an equally enormous job description he’s been given this summer. There is so much to be thankful for and as I spoke them over her, hoping she agreed, I did feel a pressure release. As I continued praying; more miracles, more healing, no pain, etc. etc. she nodded her head along. Like any two people bound by faith it felt like the most normal thing in the world to just be sitting there praying. Its easy to forget how far we’ve come and sometimes, thankfully, its easy to forget how far we go. We get glimmers of normalcy and huge progress and its just so overwhelming. All I can pray is “Thank you, God, more!”

For Katie the Warrior

September

Oh how I have been dreading September. It started with my brother-in-laws birthday, days later it will be he and Kate’s sixth wedding anniversary, their daughters birthday, both of my parents birthdays. It feels brutal. Suffocating. It’s hard to celebrate in the midst of so much sorrow. A few weeks after Kate became so ill one of our pastors spoke on celebration as a spiritual discipline and I think we took a collective sigh of relief knowing that September was on its way. We do need to celebrate, we need to remember that we have huge reasons to celebrate and that Kate would want us to celebrate! Once you start, you know it’s so right and good. These people and milestones deserve to be celebrated and who doesn’t love cake!

I’ve been reading Ann Voskamp’s One Thousand Gifts and while her writing style grates on my nerves the point of the book is not lost on me. Especially when so much feels wrong and cruel, I have to meet God with thanksgiving for everything. If I ever want to experience joy I need to celebrate and name our victories and blessings, whereever I find them. And we have so many.

Just this week my sweet nephew has been sharing memories with me when I remind him of Kate. The silly things I say, the way I tell them not to announce their gas in public, etc. I’ve been so thankful that I remind the kids of their mommy, that I’m in a position to be able to spend so much time with them, that I feel strengthened in hard moments to talk about Kate and stop what we’re doing to pray for her. I can’t wish this season away, as much as I’d like to! September is here, coma emersion is a long process and we’re in it for the long hall, little minds have questions and somehow over the last two months I haven’t totally botched any responses. We’re forced to stay present, there is no other option to do this thing well, so we might as well be thankful along the way.

And now for an update on Kate! I asked for specific prayers last week that she’d grow two points on her emersion scale, and she did! And another point this week!

She’s started pointing to a board with the words “yes” and “no” to answer questions and she’s getting all the answers right! This is so good! My mom asked her the other day about birthday gifts for Nevin. She said “no” to an H&M gift card and “yes” to JCrew. (Clearly she’s of sound mind!) But seriously, the answers she’s giving give us so much hope that although she can’t communicate with her voice she still knows who we are and the right store for her husbands birthday gift. Your prayers are so important to us, God is moving mountains! I’m serious, mountains! We have a really long road to go. We don’t know what Kate will go through and be like and be able to accomplish in the next year or two. We are so hopeful that she will be restored to us. She probably won’t be exactly the same, by Gods grace none of us will ever be the same. For now we are so thankful for small victories that show up weekly and we just keep praying for the mountains to be moved.